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Category: Resources & Support

“Words matter.” It’s a phrase we hear and use frequently. It’s also something that can be a particularly tricky mine field for those living with Tourette Syndrome (TS) and, more specifically, coprolalia. In October, we shared with you a story out of Indiana where a young man living with TS was asked to leave his college campus as a result of offensive and unnerving phrases he involuntarily uttered. Unfortunately, this isn’t the only incident that has come across my desk in the last few weeks.
2020 has certainly proven to be one of the most unpredictable and challenging years for everyone. While the uncertainty of the pandemic may have made us rethink how we support the community, it did not derail us. In fact, by the close of this year the Tourette Association of America will have tripled our virtual offerings, with almost 100 virtual support initiatives – from a free Virtual Conference, weekly webinars, a Virtual Gala and virtual walks around the country. To continue at this pace, we need your financial support.
We have been hard at work preparing for our Virtual Gala coming up on October 29. I am excited to share that ticket sales are now available and are affordable for the whole community. In addition, our online auction has gone live with a plethora of amazing items – from an autographed Billie Eilish photo, to an exclusive trip to Greece, autographed sports memorabilia and so much more. Join us, spread the word and peruse a number of amazing items, that fit all budgets, just in time for the holiday season. There is a phenomenal lineup of speakers planned for the Virtual Gala that I can confidently say, without giving anything away, you won’t want to miss. The conversations we’ve had gearing up for the event have spanned the gamut from ear-to-ear smiling to tears – in the most touching of ways. The evening will showcase the resiliency, tenacity, and compassion of our community that is breaking down barriers for all to live their most authentic life.
Dear Friend, I am excited to share updates on progress being made on behalf of our resilient community. We’ve launched a new donor exclusive series that delves deeper into advancements made as a direct result of your contributions. There has always been a heightened need for access to TS programs and offerings that support underserved areas across the US. In our current state, we have tripled offerings to ensure everyone – underserved or locally supported by a TAA Chapter or Support Group – can have the access that is so desperately needed.
In the last several weeks we've seen a spike in outreach to the TAA encompassing stories related to workplace, housing and corporate discrimination. This is not something our community is unfamiliar with, but the national spotlight on similar topics reminds us that we must equip ourselves with knowledge. It is important to understand your rights and when they are being violated. Later this month is the 30th anniversary of the Americans with Disabilities Act (ADA). This landmark civil rights law extended the right for our community, and many others, to access public places, businesses, and to participate in the same everyday activities as other citizens. In celebration, there is a free webinar on July 29 highlighting workplace accommodations and disability rights which we hope you will attend.
The upcoming school year will be vastly different in light of COVID-19. Whether classes are held in-person or virtually, the Tourette Association of America is here to provide you with resources and tips for every type of classroom setting. We understand that there is not a one-size-fits-all approach when it comes to school this year. School attendance is particularly unique. Everyone has different ideas and opinion.  Know that the choices you make are what's best for you and your family. To help guide you into the new school year, members of the TAA's Education Advisory Board have offered advice on best practices that will help reduce anxiety and give some predictability and routine to the school year.
In the last several weeks we've seen a spike in outreach to the TAA encompassing stories related to workplace, housing and corporate discrimination. This is not something our community is unfamiliar with, but the national spotlight on similar topics reminds us that we must equip ourselves with knowledge. It is important to understand your rights and when they are being violated. Later this month is the 30th anniversary of the Americans with Disabilities Act (ADA). This landmark civil rights law extended the right for our community, and many others, to access public places, businesses, and to participate in the same everyday activities as other citizens. In celebration, there is a free webinar on July 29 highlighting workplace accommodations and disability rights which we hope you will attend.