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Category: Resources & Support

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Happy New Year! Looking back on the last decade, we have made significant strides towards greater understanding, awareness and acceptance of Tourette Syndrome and co-occurring conditions. We continue to extend our footprint across the country with more national events including the Funders Breakfast in New York City, new webinars, increased provider education programming and an expanded Centers of Excellence program. 2020 is also monumental as it marks the return of our biennial National Conference.
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One of the most common co-occurring conditions is Attention-Deficit/Hyperactivity Disorder (ADHD). This webinar will discuss the diagnostic criteria for ADHD and how the clinical presentation of ADHD presents from the preschool years to adulthood. It will also cover the co-occurrence of ADHD, tics and related comorbid disorder and the treatment options and issues associated with co-occurring ADHD and tics.
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This webinar is suitable for all providers who are interested in working with patients suffering from Obsessive Compulsive Disorder (OCD). It reviews the assessment of OCD as well as evidence-based interventions such as psychoeducation, cognitive strategies, mindfulness, exposure and response prevention. We will focus on the integration of different treatment strategies for the different types of OCD symptoms. The impact of common comorbidities, strategies to address treatment non-adherence to maintain treatment gains will also be discussed.
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From all of us at the Tourette Association of America, we wish you a joyous holiday season and a prosperous new year. 2019 was an impactful year, engaging the community with more training, education, events, and other awareness opportunities around the country. We hope to continue to shift public perception and inspire greater acceptance and inclusion for the TS community. This work is only made possible through your support.
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To kick-off the season of giving, we hosted the 2019 annual Gala honoring David Begnaud, Lead National Correspondent for CBS This Morning, on November 18. The event raised more than $850,000 and featured empowering messages from David, TAA Youth Ambassadors Mia Mantei and Jordan Falkenstern, NYC Public Advocate Jumaane D. Williams, and an amazing performance by the Michael Wolff Trio. We all know the best deals are on Black Friday and Cyber Monday, but it's Giving Tuesday that's the most rewarding. For this international day of giving, we are calling on you to join the movement and support the TAA by making a donation, hosting a Facebook fundraiser, or by sharing our important messages throughout the day.
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It is estimated that 1 MILLION Americans have Tourette Syndrome (TS) or a Tic Disorder. While that number may be staggering, our collective awareness efforts have increased understanding of the disorder, resulting in improved time to diagnosis. In a recent impact study led by the TAA, 71% of caregivers of children with TS reported receiving a diagnosis in less than 2 years, where most adults were diagnosed after 10+ years. HOWEVER, THE NEED FOR PROGRAMS AND SUPPORT RESOURCES CONTINUES TO GROW. Make a year-end gift and it will be doubled, thanks to the Ochsman Foundation.
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Developing from a teenager to a young adult can be a challenging and rewarding process, especially for individuals with Tourette Syndrome. Through self-advocacy as well as recognizing and utilizing their strengths, young adults can feel empowered to take control over their life. Dr. Anthony Rostain and Dr. Marc Schmidt recently discussed the process of transitioning from childhood to adulthood.
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It's October, and while many of us are making plans to celebrate Halloween we cannot ignore some important causes the month sheds light upon. October is National Bullying Prevention Month, ADHD Awareness Month and OCD Awareness Week. Tourette Syndrome is an extremely layered and complex disorder and remains so vastly misunderstood among the general public. There is no one-size-fits-all approach, and because of this, the TAA partners with like-minded organizations that support our efforts. I encourage you to reflect on your journey with Tourette Syndrome and if you’ve been impacted by any of the above, please send us your personal story to help us join their efforts in elevating awareness for TS and co-occurring conditions.