leap for progress

TouretteConnect February 2020

2019 showcased something powerful: the togetherness of the Tourette Syndrome and Tic Disorder community demonstrating that we are the most powerful when we all work together. We are never alone. For us, that’s really what the Tourette Association of America is all about. Reminding people that they are not alone in their journey to a diagnosis or an effective treatment. Not alone in their efforts to explain to their teacher or boss why they “just can’t stop doing that.” Not alone in thinking that, once again, a trip to the allergist or ENT isn’t going to stop the throat clearing. Not alone in being completely visible, when all you want is to be invisible. Not alone in sometimes feeling very much alone.

The TAA remains a beacon of hope for newly diagnosed families, adults and teens. Each year, tens of thousands of families reach out to the TAA seeking guidance, kindness, and support. With your ongoing assistance, we will continue to provide a high level of commitment and service to our community well into the future. As part of our effort to increase general understanding and acceptance, we encourage each of you to get connected and share your personal stories on social media.

I invite you to peruse through the Fiscal Year 2019 Annual Report, highlighting the tremendous work of the TAA and the community. We cannot do it alone. It is only through your support that we are propelled to new heights. We are proud to showcase this year’s most notable accomplishments toward making life better for all people impacted by Tourette Syndrome and Tic Disorders. We are deeply grateful for your involvement. Because of you, the last 47 years have been possible. Because of you, tomorrow is full of promise.

Gratefully,

Leap Year

Celebrate Leap Year with the TAA
[Awareness]

You never know what tomorrow may bring. An extra 24 hours gives you another day to support the people you love, volunteer, or get involved in your community. Collectively, we have made great strides in elevating awareness and understanding of Tourette Syndrome and Tic Disorders across the nation, but we know that the complexities of this disorder can be difficult to understand. Today’s tics may be manageable, but tomorrow may require more support.

Celebrate leap year by making a gift to the Tourette Association of America to ensure that progress continues. We are here for you and your loved ones, paving the way to a brighter future.


Click to Make A Gift

Pandas

TAA’s Statement on PANDAS
[Research]

There have been discussions around tic and neuropsychiatric disorders being triggered by an underlying autoimmune or autoinflammatory response, collectively referred to either as PANDAS or PANS.

In response, the Tourette Association of America PANDAS/ PANS workgroup recently released a summary of the current research available on PANS/PANDAS and Tourette Syndrome.


Click to Learn More

Tourette Connections

Tourette Connections
[Support]

The second annual Tourette Connections Conference will take place on March 20 in Green Bay, Wisconsin. This free conference is designed to educate the community on new ideas to help manage tics.

Tourette Connections will feature a lecture format as well as organized physical activities. Professionals, adults, families and friends are welcome to attend. The deadline to register is March 12.


Click to Register

Take Action

Make Your Voice Heard
[Public Policy]

There is an estimated 30% proposed cut to the CDC National Center on Birth Defects and Developmental Disabilities, which directly impacts funding for Tourette Syndrome and Tic Disorders.

It is more important than ever to advocate to help our community. Take action today by completing an electronic letter to your elected officials notifying them about the most important issues facing the community. Share and encourage your family and friends to show their support by sending a letter as well.


Click to Take Action

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What’s Happening
[News and Events]

*The Warren Alpert Medical School of Brown University designates this live activity for a maximum of 1.0 AMA PRA Category 1 Credits™. This credit is accepted by the AAPA and AANP. Physicians should claim only the credit commensurate with the extent of their participation in the activity.


Click to View All Events