TouretteConnect – January 2020

Happy New Year! Looking back on the last decade, we have made significant strides towards greater understanding, awareness and acceptance of Tourette Syndrome and co-occurring conditions. We continue to extend our footprint across the country with more national events including the Funders Breakfast in New York City, new webinars, increased provider education programming and an expanded Centers of Excellence program. 2020 is also monumental as it marks the return of our biennial National Conference.

We are thrilled to host Conference in a new city for the first time in 10 years. To be held in Minneapolis, MN on May 14-17, it is the largest national research, practice, and public information Conference dedicated to Tourette Syndrome and related Tic Disorders. This event will feature collaborative programming and presentations for families, adults, providers and professionals to learn and engage with one another.

Kicking off the Conference is a Symposium for researchers, by researchers, where diverse, interdisciplinary thought leaders will exchange and stimulate new research ideas.

The TAA has made efforts to make Conference more affordable with lower rates for all attendees and we are proud to offer scholarship assistance, thanks to the generosity of sponsors and donors.

In the coming months we will host a plethora of national events that we welcome you to attend. Save the dates for the Funders Breakfast on January 30, National Awareness 5K Run/Walk on June 7 and the Illinois Golf Classic & Dinner and Ladies’ Game Day on June 15.

Gratefully,

80638461_10156554195797676_1311194098891227136_n

The News Anchor Whose Tics Get No Airtime
[Awareness]
The January 2020 issue of Oprah Magazine featured women who are living with chronic health conditions. Nikki Burdine, a 36-year-old news anchor, shared her story and experiences with Tourette Syndrome.
“In my case, I’m no longer embarrassed about having Tourette. The truth is, everyone is battling something. My struggle is just a little more obvious.” – @nikkiburdine

hospital 200

Expanding our Centers of Excellence
[Research]
The TAA’s Centers of Excellence (CofE) program recognizes medical institutions that offer the highest level of care, are undertaking groundbreaking research, are leaders in training and education and provide exceptional community outreach and advocacy for Tourette Syndrome and other Tic Disorders.

Since its launch in 2014, the TAA has collaborated with over 20 Centers across the country to address the community’s needs and concerns. We’re continuing to expand this work in 2020, and are accepting applications through the end of this month.

Conference insta pic

Scholarship Opportunities at the National Conference
[Support]
Thanks to the generosity of donors, scholarship funds are available to assist individuals and families who wish to attend Conference. Funding will be awarded based on the needs of each applicant. If you’re interested in attending Conference, but are worried about the costs, we encourage you to learn more and apply for a scholarship.

Cap Hill 200

Join Advocacy Day Efforts
[Public Policy]

Registration deadline is February 8. On March 4, in Washington, D.C., the TAA will advocate for the most pressing issues facing the TS community on National Advocacy Day. Youth Ambassadors, TAA staff, volunteers, and community members will head to Capitol Hill to speak with elected officials on legislation affecting the community.

events

What’s Happening
[News and Events]

*The Warren Alpert Medical School of Brown University designates this live activity for a maximum of 1.0 AMA PRA Category 1 Credits™. This credit is accepted by the AAPA and AANP. Physicians should claim only the credit commensurate with the extent of their participation in the activity.