It is estimated that 1 MILLION Americans have Tourette Syndrome (TS) or a Tic Disorder. While that number may be staggering, our collective awareness efforts have increased understanding of the disorder, resulting in improved time to diagnosis. In a recent impact study led by the TAA, 71% of caregivers of children with TS reported receiving a diagnosis in less than 2 years, where most adults were diagnosed after 10+ years.
HOWEVER, THE NEED FOR PROGRAMS AND SUPPORT RESOURCES CONTINUES TO GROW.
As we look to address the need and dive deeper into new communities, we have added 13 new Support Groups across the nation, and responded to over 3,000 calls and emails looking for support.
The TAA continues to offer training sessions for medical and allied health professionals, educators and the general public. In 2019, 479 individuals received an introduction to CBIT training, or were trained in CBIT, the recommended first-line of treatment for Tourette Syndrome.
6,010 took advantage of family and community-based education programming and 1,718 education professionals attended our education presentations. 116 Youth Ambassadors, along with their team members, were trained as Tourette Syndrome advocates and 24 young adults were part of an inaugural class of Rising Leaders trained to be the next generation of advocates.
THIS WORK IS ONLY MADE POSSIBLE THROUGH DONATIONS.
50% of all people with TS and Tic Disorders are going undiagnosed. Your dollars allow us to reach more adults, teens and families who are lost in the face of a new diagnosis, or have yet to receive one. The evolution in TS understanding and social acceptance continues to change, but you remain an integral piece.
We remain invested in providing new and improved tools, but in order to do so, we need your unwavering support.