We hope this finds you well during this stressful time. The Tourette Association of America is committed to providing the TS and Tic Disorder community with information and resources that can help support you and your loved ones as we contend with COVID-19.
At the time of this writing, the CDC recommendation is to cancel or postpone gatherings of 50 or more people for the next eight weeks. The TAA will follow these guidelines and closely monitor updates as they become available. Online and virtual programming will ramp up in the coming days to ensure we remain your best resource during this complicated and confusing time. Please continue to check tourette.org for additional communications and further information.
The TAA has closed its physical offices and transitioned to work-from-home through March 27. At that time we will reevaluate best next steps to ensure ongoing mission delivery, the safety of our staff, and the health of the organization. In the meantime, we remain 100% committed to meeting the needs of our community. All managers and staff members of the TAA team are just a phone call or email away. Please visit our staff page to reach staff directly via email with any questions or concerns.
For those of you in the Tourette Syndrome community who have a coughing or sneezing tic, we urge you to dispel confusion about your “symptoms” by downloading the “I Have TS” ID Card. This is a free downloadable resource available here: “I have TS” Card.
Please be safe, be smart and be cautious. If you have not already done so, we encourage you to familiarize yourselves with recommendations to protect against getting and spreading COVID-19. You can find the information here: CDC Global COVID-19 Outbreak Notice.
In times of crisis we remember the importance of community, family, and friends. Togetherness may be taking on a new meaning, but we remain steadfast in being the shoulder to lean on for each of you. Please consider making a gift to ensure that those impacted by TS or a Tic Disorder have the necessary resources to keep a sense of normalcy in our new normal.
With gratitude and appreciation,
Access TAA Videos for Support
If you are looking for advice on how to keep a check on your mental health, finding a better way to manage tics, or learning more about co-occurring conditions like OCD and ADHD, our videos feature a wide range of topics for all ages that can offer help, hope and support.
Visit our YouTube channel, Tourette TV, to view more than 350 original videos for teens, educators, medical professionals, adults and families impacted by Tourette Syndrome. In addition, you can scroll through a library of past webinars that highlight requested topics on the spectrum of disorders.
Centers of Excellence
In these confusing and stressful times, it is important to know that there is a national network working to support the community that the TAA is always looking to expand. Through the TAA’s Centers of Excellence program, we recognize medical institutions around the US that offer the highest level of care, are undertaking groundbreaking research, are leaders in training and education and provide exceptional community outreach and advocacy for Tourette Syndrome and other Tic Disorders.
In the last year, we expanded the program to include five new designations, totaling 18, across the nation.
Young Professionals Group Launches
In an effort to provide adults with TS more support and opportunities, the TAA recently launched the Young Professionals Group.
The Young Professionals are a group of advocates in the New York metro area who aim to raise awareness and increase social acceptance of Tourette Syndrome while networking, developing professionally, creating service opportunities and having fun.
Rallying for Tourette in Washington, D.C.
The 2020 National Advocacy Day in Washington, D.C. was a major success. Youth Ambassadors, Rising Leaders, family members, TAA staff, and volunteers advocated for the most pressing public policy issues facing the TS community at over 150 meetings with elected officials on Capitol Hill.
A special thank you to all representatives, and their staff, for participating in the meetings, listening to the impactful stories, and for considering the asks made for continued funding that will improve the quality of life for all impacted by TS.
[News and Events]
- 3/20/20: Tourette Connections in Wisconsin – Cancelled
- 3/29/20: ArtisTIC Expressions in Southern California – Postponed
- 4/7/20: Free Webinar: International Exchange and Tourette Syndrome
- 4/18/20: Tourette Panel Discussion – Postponed
- 4/18/20: 2020 Cutting Edge Topics in Tourette Syndrome in New York – Postponed
- 4/26/20: Free Webinar: A Graduate Student’s Guide: Assessment and Treatment of Tics and Tourette Disorder
- 5/2/20: Tic Talk 2020 in Missouri
- 5/3/20: Kansas City 5K Walk/Run & Kids Dash – Postponed
- 5/7/20: Provider Series: Evidence-based Treatment and Management of TS*
- 5/14/20: Addressing School-related Impairments in Students with Tics and Tourette Disorder in the Classroom in New York
- 5/14/20 – 5/17/20: National Conference 2020 in Minnesota
- 6/4/20: Southern Jersey Walk for Tourette Syndrome
- 6/4/20: Helping Parents Understand and Manage the Academic Impact of Tourette Disorder, ADHD, and Learning Disorders in New York
- 6/7/20: National Awareness 5K Run/Walk in New York
- 6/15/20: Illinois Golf Classic & Dinner and Ladies’ Game Day
- 7/11/20 – 7/12/20: Behavior Therapy Institute/CBIT Training (TS-BTI) in Chicago
- 8/2/20 – 8/3/20: Behavior Therapy Institute/CBIT Training (TS-BTI) in Seattle
- 8/22/20: One Tic at a Time 5K & Fun Run
- 9/20/20 – 9/21/20: Behavior Therapy Institute/CBIT Training (TS-BTI) in New York
- 10/24/20 – 10/25/20: Behavior Therapy Institute/CBIT Training (TS-BTI) in Phoenix
- 10/29/20: TAA Gala in New York
- 11/1/20: TCS New York City Marathon
*The Warren Alpert Medical School of Brown University designates this live activity for a maximum of 1.0 AMA PRA Category 1 Credits™. This credit is accepted by the AAPA and AANP. Physicians should claim only the credit commensurate with the extent of their participation in the activity.