Getting a Diagnosis for Tourette Syndrome or Tic Disorders
To help people obtain a proper diagnosis when Tourette or Tic Disorders are suspected, the Tourette Association of America has compiled a list of Medical and Allied Professionals who are knowledgeable about this spectrum of neurological disorders. We have also established a network of “Centers of Excellence,” which are models of coordinated care for Tourette and Tic Disorders within healthcare and hospital systems. Click here to FIND A DOCTOR.
Planning a Successful Doctor's Visit
The Tourette Association provides the most current information on the disorder, treatment options, support services, and tools for living with Tourette (for people of all ages).
The Tourette Association of America hosts numerous free webinars, Twitter “Chats,” and education programs throughout the year and across the country. Annually we host a special seminar (fee) for Newly Diagnosed. To learn about our events and programs, join our email list (Your contact information will not be shared with other parties), visit our events page, or follow us on social media.
The Tourette Association also has Chapters across the United States that can provide local support groups an other resources.
The Prognosis – What Will Happen?
Years ago, with little or no knowledge of Tourette Syndrome, the prognosis was vague. During the past 20 years, doctors have followed many more people with Tourette and Tic Disorders, so a considerable amount of information and treatment options are now available. People with vocal or motor tics may expect to lead fairly normal lives.
Four factors are important:
- The severity of symptoms.
- How well-adjusted the patient was before the onset of symptoms.
- The relationship between the patient and his or her family or support network
- The treatment used, how soon treatment was begun after onset of symptoms and the patient’s response to treatment.
If you or your child has recently been diagnosed with Tourette Syndrome (TS) or a Tic Disorder, the Tourette Association is here to support you, provide useful information, and help you find resources and professionals, including physicians, social workers, educational specialists and therapists, who can help you deal effectively with the condition.
Newly Diagnosed Backpack Application
If you have a child under the age of 18 who has been diagnosed with Tourette Syndrome or Tic Disorders in the last 12 months, please complete the information below to receive a backpack with useful information and a free gift.
The Tourette Association of America hosts a series of prestigious events year round that support our mission to make life better for all people affected by Tourette and Tic Disorders