We have been hard at work preparing for our Virtual Gala coming up on October 29. I am excited to share that ticket sales are now available and are affordable for the whole community. In addition, our online auction has gone live with a plethora of amazing items – from an autographed Billie Eilish photo, to an exclusive trip to Greece, autographed sports memorabilia and so much more. Join us, spread the word and peruse a number of amazing items, that fit all budgets, just in time for the holiday season. There is a phenomenal lineup of speakers planned for the Virtual Gala that I can confidently say, without giving anything away, you won’t want to miss. The conversations we’ve had gearing up for the event have spanned the gamut from ear-to-ear smiling to tears – in the most touching of ways. The evening will showcase the resiliency, tenacity, and compassion of our community that is breaking down barriers for all to live their most authentic life.
October is always a monumental month, as we celebrate National Bullying Prevention Month, ADHD Awareness Month and OCD Awareness Week. To continue elevating awareness for the complexity of Tourette Syndrome (TS), the TAA partners with like-minded organizations that support these efforts. I encourage you to review all upcoming virtual programs and attend the ones that suit you or your family’s needs.
In other news, we were regrettably alerted about a recent incident involving a young man who was asked to leave his college campus due to symptoms and tics related to his TS. Despite his disclosure of TS, an ADA-protected disability, we believe that the situation is being gravely mishandled and the ignorance associated demonstrates a clear lack of compassion for those impacted by neurodevelopmental disorders. We are continuing to learn more about the situation, but his peers came together to launch a change.org petition in his honor and it has been heartwarming to see the response. As more unfolds we will keep you informed – please follow our social media (Instagram, Facebook, Twitter, LinkedIn) channels to get the latest updates.
In the coming weeks ahead, there will be many accessible, exciting, fully-virtual engagement opportunities that I hope you will take advantage of. This includes a Turkey Trot, Walt Disney World Marathon Weekend, a Youth Ambassador Training, a Rising Leader Training, and National Advocacy Day. While it hasn’t been easy to not be face-to-face, we have facilitated many moments that will leave a lasting impact. I think we can all agree that May will be the most dynamic and exciting National Conference as our community will come together for a jam-packed three-day weekend of learning, connecting and growing.
As always, thank you for those who continually lead the charge in awareness, fundraising and education for the TAA. We are calling on you now and I sincerely hope that you will take advantage of all that is available. You are not alone on this journey. We are in it together.
Creating Social Impact
As part of the Thrive Global series on organizations making a social impact, Amanda Talty, TAA President and CEO, discusses her passion for elevating Tourette Syndrome awareness and delivering support for the community nationally.
Amanda also dives into what it takes to lead an organization like the TAA, and how her work has been influenced by poignant moments such as hearing how a young adult with TS was able to find the community through the TAA’s Rising Leaders program.
The Role of Behavioral Therapy
Matthew Capriotti, PhD, TAA Diversity Committee member and associate professor of Psychology at San Jose State University, recently spoke to Healthwell Foundation’s Real World Health Care blog to discuss the role of Comprehensive Behavioral for Tics (CBIT), the keys to CBIT success, and the future of behavioral therapy for Tourette Syndrome and Tic Disorders.
Dr. Capriotti also detailed the work of Treating Tourette Together, a collaboration between the TAA, the Patient-Centered Outcomes Research Institute and leading behavioral science researchers.
Attend the Virtual Gala
Spread the word, register for the event, participate in the online auction – we are counting on you! There are a variety of sponsorship opportunities available to support the TS community – learn more!
Bills in Support of Tourette Syndrome
Our public policy efforts expand far beyond the steps of Capitol Hill on National Advocacy Day. The TAA continually evaluates the needs of the TS community across the country and advocates for issues related to education and disabilities, general health care, telehealth, funding of research, access to treatment and care, and prevention of genetic and other forms of medical discrimination.
In Fiscal Year 20, the TAA signed on in support of 11 bills that directly support the TS and Tic Disorder community.
[News and Events]
- 10/16/20: SoCal TAA Virtual Celebration
- 10/27/20: Cyberbullying Prevention with PACER
- 10/29/20: Virtual Gala
- 10/31/20: SoCal TAA Virtual 5K Run/Walk
- 11/7/20: 2020 TAA-MGH Virtual Family Day Symposium*
- 11/10/20: Virtual Breakfast
- 11/25/20 – 11/29/20: Team Tourette Turkey Trot – Save the Dates!
- 12/1/20: Veronica Beard Gives Back Shopping Event – Save the Date!
- 1/7/21 – 1/10/21: 2021 Walt Disney World® Marathon Weekend
- 5/14/21 – 5/16/21: National Conference
- 6/28/21: Illinois Golf Classic
*This program is geared towards Massachusetts residents but everyone is welcome.