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Telehealth 860
The TAA understands the importance of telehealth services for communities across the country. In an effort to improve access and coverage to telehealth for Medicare recipients, the TAA has endorsed the Connect for Health Act. The bill removes barriers and improves telehealth coverage for Medicare through the Social Security Act.
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To kick-off the season of giving, we hosted the 2019 annual Gala honoring David Begnaud, Lead National Correspondent for CBS This Morning, on November 18. The event raised more than $850,000 and featured empowering messages from David, TAA Youth Ambassadors Mia Mantei and Jordan Falkenstern, NYC Public Advocate Jumaane D. Williams, and an amazing performance by the Michael Wolff Trio. We all know the best deals are on Black Friday and Cyber Monday, but it's Giving Tuesday that's the most rewarding. For this international day of giving, we are calling on you to join the movement and support the TAA by making a donation, hosting a Facebook fundraiser, or by sharing our important messages throughout the day.
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It is estimated that 1 MILLION Americans have Tourette Syndrome (TS) or a Tic Disorder. While that number may be staggering, our collective awareness efforts have increased understanding of the disorder, resulting in improved time to diagnosis. In a recent impact study led by the TAA, 71% of caregivers of children with TS reported receiving a diagnosis in less than 2 years, where most adults were diagnosed after 10+ years. HOWEVER, THE NEED FOR PROGRAMS AND SUPPORT RESOURCES CONTINUES TO GROW. Make a year-end gift and it will be doubled, thanks to the Ochsman Foundation.
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Developing from a teenager to a young adult can be a challenging and rewarding process, especially for individuals with Tourette Syndrome. Through self-advocacy as well as recognizing and utilizing their strengths, young adults can feel empowered to take control over their life. Dr. Anthony Rostain and Dr. Marc Schmidt recently discussed the process of transitioning from childhood to adulthood.
Pumpkin October TouretteConnect
It's October, and while many of us are making plans to celebrate Halloween we cannot ignore some important causes the month sheds light upon. October is National Bullying Prevention Month, ADHD Awareness Month and OCD Awareness Week. Tourette Syndrome is an extremely layered and complex disorder and remains so vastly misunderstood among the general public. There is no one-size-fits-all approach, and because of this, the TAA partners with like-minded organizations that support our efforts. I encourage you to reflect on your journey with Tourette Syndrome and if you’ve been impacted by any of the above, please send us your personal story to help us join their efforts in elevating awareness for TS and co-occurring conditions.
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The month of September is National Suicide Prevention Awareness Month. I am grateful for the continued public awareness and open discussions about this very serious topic. In a recent Impact Survey led by the TAA, an alarming 51% of adults and 32% of parents of children with TS reported to have considered suicide or participated in self-harming behaviors. In light of this, there are a number of helpful organizations (AFSP, NIMH, NAMI) and resources to support you and your loved ones, including Chapters and Support Groups across the country. Please know that if you need help, there is always someone to call. A Support Group Leader from the TAA Florida Chapter shared a personal story about how suicidal thoughts impacted her family that really hit home for me.
2augustwebinar
While living with tics and other co-occurring conditions can certainly bring substantial difficulty, coping with a chronic condition like Tourette Syndrome can also build persistence, grit, and determination. In this free webinar, Dr. Kenneth Phelps, Associate Professor of Clinical Psychiatry, will identify key components of adapting and thriving while living with tics.