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Making a Difference on Advocacy Day

On March 4, in Washington, D.C., the Tourette Association of America will advocate for the most pressing issues facing the TS community on National Advocacy Day. Youth Ambassadors, TAA staff, volunteers, and community members will head to Capitol Hill to speak with elected officials on policy affecting the community. Youth Ambassadors and a Support Group Leader share their experiences from past Advocacy Day events and what it was like to #Rally4Tourette.

The News Anchor Whose Tics Get No Airtime

As part of O, The Oprah Magazine’s December 2019 issue featuring women who live with chronic health conditions, Nikki Burdine shared her story and experiences with Tourette Syndrome. “In my case, I’m no longer embarrassed about having Tourette. I just don’t want it to be a distraction from my job or a reason for people to treat me differently. The truth is, everyone is battling something. My struggle is just a little more obvious.” – Nikki

Aiden Inspires His Adopted Family

I walk with Team Tourette because my son has given me a whole new meaning to life. We brought our boy Aiden home from the hospital on January 14, 2012. Four days earlier, he was born to parents who were unable to care for him. We were able to adopt him into our family exactly one year later and on January 14, 2013, we officially went from a family of four to a family of five.

Free Webinar: ADHD and TS

One of the most common co-occurring conditions is Attention-Deficit/Hyperactivity Disorder (ADHD). This webinar will discuss the diagnostic criteria for ADHD and how the clinical presentation of ADHD presents from the preschool years to adulthood. It will also cover the co-occurrence of ADHD, tics and related comorbid disorder and the treatment options and issues associated with co-occurring ADHD and tics.

Provider Webinar Series: Diagnosing Tourette Syndrome and Initial Considerations

This webinar is suitable for all providers who are interested in working with patients dealing with Tourette Syndrome. Dr. John Walkup will lead a discussion on diagnosing Tourette Syndrome and initial considerations.

Provider Webinar Series: Cognitive Behavioral Therapy for OCD

This webinar is suitable for all providers who are interested in working with patients suffering from Obsessive Compulsive Disorder (OCD). It reviews the assessment of OCD as well as evidence-based interventions such as psychoeducation, cognitive strategies, mindfulness, exposure and response prevention. We will focus on the integration of different treatment strategies for the different types of OCD symptoms. The impact of common comorbidities, strategies to address treatment non-adherence to maintain treatment gains will also be discussed.

TouretteConnect – December

From all of us at the Tourette Association of America, we wish you a joyous holiday season and a prosperous new year. 2019 was an impactful year, engaging the community with more training, education, events, and other awareness opportunities around the country. We hope to continue to shift public perception and inspire greater acceptance and inclusion for the TS community. This work is only made possible through your support.

TAA Supports Telehealth Medicare Coverage Expansion Legislation

The TAA understands the importance of telehealth services for communities across the country. In an effort to improve access and coverage to telehealth for Medicare recipients, the TAA has endorsed the Connect for Health Act. The bill removes barriers and improves telehealth coverage for Medicare through the Social Security Act.