As a Tourette Association Youth Ambassador Team, you play a key role in increasing awareness and understanding of Tourette Syndrome and tic disorders in your community. You should be prepared to present in various settings (for example: schools, after-school clubs, scout meetings, athletic team meetings) as needed.
In addition, you will be asked to:
- Become an active advocate by learning about TS, the Tourette Association and the issues impacting families.
- Prepare short statements (written and spoken) to explain TS and its impact on your (or a diagnosed individual’s) life.
- Be interviewed by your local media.
- Attend functions such as corporate breakfasts to present short speeches and chat with executives.
- Participate in Public Policy Action Alerts and recruit other local activists to support grassroots advocacy efforts.
- Organize events for the Tourette Association’s annual Advocacy Day efforts and attend Capitol Hill meetings.
- Meet, call, or write to federal and local elected officials.
The role varies throughout the year, and is often linked directly to major annual events. For example, children and families might work with local media during Tourette Syndrome Awareness Month, May 15-June 15 of each year.
Estimated time commitment required from each Youth Ambassador Team:
- This is flexible and highly negotiable, however YA Teams are asked at minimum to commit to scheduling one full school year’s worth of presentations to peers. A lot of YA’s present for several years after they train.
- We do ask that you and your family consider your availability carefully – the demand for presentations can become substantial.
- Please note: It is not unusual for Youth Ambassadors to be asked to present during school hours, as a large portion of a Youth Ambassador’s role is to educate in schools during the school year.