TouretteConnect September 2020

Dear Friend,

I am excited to share updates on progress being made on behalf of our resilient community. We’ve launched a new donor exclusive series that delves deeper into advancements made as a direct result of your contributions. These exclusive presentations launched on September 15 and included Dr. Liana Fasching and Dr. Wissam Deeb, Young Investigator Award Grantees, presenting on their current research projects with Dr. Marc Schmidt, TAA Scientific Advisory Board Member, moderating an interactive Q&A session. We look forward to hosting the second exclusive research update on September 24, from 5-6pm EST.

If you would like access to these opportunities, please consider making a financial gift that can support the TAA and our research programs. To make a greater impact, The Ochsman Foundation has agreed to match your gift dollar-for-dollar up to $100,000 if received by December 31, 2020. That means your gift can go twice as far in supporting research, education, awareness and other advancements that break down barriers and improve life for all impacted by TS or a Tic Disorder.

There has always been a heightened need for access to TS programs and offerings that support underserved areas across the US. In our current state, we have tripled offerings to ensure everyone – underserved or locally supported by a TAA Chapter or Support Group – can have the access that is so desperately needed. The next wave of Online Support Group registration has launched and is a free and highly-accessible opportunity. The options include three parent-focused groups – Tourette Syndrome 101, Living with Tourette Syndrome, and TS and Explosive Behaviors/Rage, as well as a young adult group and a Spanish-speaking group.

We couldn’t imagine postponing our Annual Gala for a year, so we went virtual. Being hosted on October 29, 2020, this event will emphasize the power of our community and the TAA. For the first time ever, this high-end event will be opened up to the general public and features Ben Brown, host of Tourette’s Podcast, as emcee. Virtual Gala will also feature an auction, live entertainment and the opportunity to hear from inspirational voices. Ticket sales begin on October 15, but various sponsorship and advertising opportunities are available now.

TAA staff and volunteers continue to mobilize to provide innovative programming and resources, but your involvement is crucial now and in the future. We can’t accomplish our mission without the help of our constituents and we rely on the generosity of people like you. This time of year always brings a rise in communications from the TAA. Please see the outline below of what you can expect within the coming weeks and months ahead. We are grateful for your involvement – whether attending, supporting, or spreading the word.

1. Fall Newsletter
2. Research Update: Propelling Innovation, Advancing the Future
3. Virtual Breakfast
4. Gala Communications
5. National Conference
6. National Spanish-speaking Awareness Campaign
7. #GivingTuesday

Gratefully,

Suicide Prevention Awareness Month

[Awareness]

In a 2018 Impact Survey led by the TAA, an alarming 51% of adults and 32% of children reported having considered suicide or participated in self-harming behaviors. In light of this, the TAA partners with like-minded organizations such as AFSP, NIMH, and NAMI as well as prestigious doctors, to provide resources to support you and your loved ones

Please know that there is always someone to turn to. If you, or someone you know, are having suicidal thoughts, or require immediate support, please call the National Suicide Prevention Lifeline at 1-800-273-8255 or call 911 immediately.

Double Your Impact on TS Research

[Research]

As a result of past support, we now have a better understanding of the causes and treatments for Tourette Syndrome and Tic Disorders. There is still so much more to discover, which is why your support is crucial.

Learn about how your dollars have contributed to TS research and consider making a donation to support the ongoing development of novel and promising treatment options. Give before 12/31 and your gift will be doubled thanks to The Ochsman Foundation!

TAA Online Support Groups

[Support]

Registration for the 2020-2021 Online Support Groups are available now! Choose from three parent groups including Tourette Syndrome 101, Living with Tourette Syndrome, and TS and Explosive Behaviors/Rage, as well as a young adult group and a Spanish-speaking group. Space is limited and registration is on a first come, first served basis.

Last Chance to Support Telehealth Coverage Expansion

[Public Policy]

Have you utilized telehealth services during the pandemic? Your input is imperative. Telehealth has become an increasingly popular among the TS and Tic Disorder community we need to ensure this increased coverage continues.

Please submit your experiences of how telehealth has benefitted you, or a loved one, in the care of Tourette Syndrome or other Tic Disorders. Assist us in advocating for the extension of these services to further help the community in the years to come.