Participating in trials and studies is one of the most impactful ways to advance cutting-edge research into the treatment and understanding of TS and other Tic Disorders. The TAA facilitates access to several opportunities for you and your loved ones to participate in a trial or study. There are two types of research for you to participate in:
- A clinical trial is a type of medical research study where volunteers participate to test out a particular intervention for a disease.
- A research study includes a broader umbrella of research that involves generating a question and creating a hypothesis to test out that question.
The trials and studies listed on the pages linked below are for informational purposes only and are not being conducted by the TAA, nor is any relationship being claimed between TAA and the study teams by virtue of their inclusion on these lists.
If you have new TS and Tic Disorder research findings you’re interested in sharing with the TAA, please contact resmed@tourette.org
Clinical Trials
A clinical trial is a type of medical research study where volunteers participate to test out a particular intervention for a disease. These interventions are often new or existing drugs, devices, or other kinds of treatments. These are typically the highest level of research with regards to interventional research. As a result, clinical trials often must go through a rigorous process that involves review and approval from both the Food and Drug Administration (FDA) and the clinical trial’s respective institutional review board (IRB). Results and data are also continuously reviewed by data and safety monitoring boards (DSMBs) for experiment progress and potential treatment side effects throughout each phase of the study. Clinical trials should also have a respective link to their study on the clinicaltrials.gov website.
Research Studies
Research studies include a broader umbrella of research that involves generating a question and creating a hypothesis to test out that question. There are many types of research studies including but not limited to observational studies, systematic reviews, and basic science experiments. The primary purpose of a research study is to contribute to new knowledge by collecting qualitative and/or quantitative data through an evidence-based approach. Research studies must be reproducible, meaning someone else can conduct the same study/experiment and achieve similar results. They do not always involve interventions and can be observational in nature. They also do not have to be medically related.
If you are an early career researcher interested in applying for a research grant, we encourage you to learn more about the TAA Young Investigator Award research grant.
