Privacy Policy

The Tourette Association of America, Inc. (“TAA”) cares about your privacy. Our Privacy Policy governs the use of any information collected from donors at (the “Website”) or offline while the policy is in place. By using the Website, you are acknowledging and accepting this Privacy Policy. This policy applies to both the online collection of information at the Website and the offline collection of information by TAA. Sites which are linked to or from the Website may have different privacy policies. TAA is not responsible for the privacy policies, or lack thereof, of sites accessed through links from our site. Please review the privacy notices on such sites for details. We reserve the right to change this privacy policy and encourage you to revisit this page. If TAA changes its privacy policy, we will post such changes at this site.

Collection of Information

TAA collects only the information that you choose to input through the Website or provide on a reply card/donation card or survey. This may include personally identifiable information such as your email address, name, mailing address, telephone number, fax number, credit card information or other information to enable you to receive newsletters, enjoy membership benefits, join our organization, request publications, register for an event, or to send us an email query.

Use of Information

TAA may use the information provided by donors to fulfill your requests for membership, donations, newsletters, products, programs, and services, to respond to your inquiries about our offerings, to alert you other products, programs or services that we believe may be of interest to you, and to generally communicate with you about Tourette Syndrome and the TAA. You can opt-out of any or all communications at any time. Please email your request to opt out to [email protected], check off the opt-out button on electronic communications, or call with your request to 888-4TOURET.

Resale or disclosure of information to third parties

TAA will not sell, rent, loan, trade, or lease personal information of donors or others, regardless of how it is submitted (e.g. website, mail in reply card, registration) TAA may share personally and non-personally identifiable information with third parties under limited conditions, namely TAA will disclose personal information (i) as may be permitted or required by law or court order, (ii) as may be necessary to protect the rights or property of TAA, or (ii) to select third party agents with whom TAA has contracted to carry out internal operations of the site or the assist in the activities of TAA.

Browser information collected on our web site

TAA collects the domain names and IP addresses of its visitors, along with usage statistics (e.g., types of web browsers and operating systems used) and browsing history. This data is used to more efficiently operate TAA’s business, promote our services and administer the Website. TAA may combine this information with the personally identifiable and other information it collects.


TAA attempts to protect against the loss, misuse and alteration of your personal information. TAA has implemented reasonable administrative, technical and physical measures to protect your personal information.

Contact Us

If you would like to opt-out of receiving further communications from TAA, please send an e-mail to [email protected], or a letter to TAA, 42-40 Bell Blvd., Bayside, NY 11361-2820. If you have any questions, concerns or suggestions regarding the Privacy Policy, please contact us as described in the preceding sentence.